26.07.13 - Appointment at the Assisted Conception Clinic, Christchurch Womens.
I was very nervous, not sure why, maybe its because i didnt want bad news, or maybe its because I didnt know what to expect today. Was also pretty excited something was finally happening!
Got to appt. early so they took me straight away. Nurse did my height and weight, only just scrapped through with the BMI and she made a point of saying so. Ive been trying really hard to keep on the weight. Apparently she also sniffed me she told me later, haha, apparently lots of people must lie about being smokers, lucky i quit 10 years ago isn't it.
I gave her my giant folder of scan results, radiologist reports and blood test results and she disappeared to find the specialist to go over my notes, we waited very patiently while they read over my mountain of notes and prepared their list of questions for me.
Finally i met the registrar and her medical student (I have a feeling im going to be a case study for a lot of the Uni of Otago students) so will meet lots of people by the end of this journey. I was so nervous I cant remember either of their names tho! Whoops.
So the questions begin. We talk about my periods, my bowels, my diet, my bladder, my thyroid, my uterus, my blood test results and other past health issues which all sum up why I was there to see her today. By the time we have finished talking they give me 'the pity look' which I now get alot and they have surely worked out that Im going to be quite a complex case. That can either be a good thing (if my surgeon likes a challenge) or bad if all of those above will mean we have a snowballs chance of growing our family and assisted fertility is not an option.
Sooo...the long and the short of it is I need to now go for a more detailed MRI of my pelvis to ascertain if I do infact have UU, find the ovaries, the one fallopian tube, make sure its not scared and blocked, see if there a rudimentary right horn that needs to be surgically removed. I will also be getting an HSG of my uterus, which i knew i would need so thats ok, (http://en.wikipedia.org/wiki/Hysterosalpingography) to give them more information on the shape and volume. My kidney function is being retested via the bloods I did today to see if I need to see the kidney specialist, my thyroid TSH levels are being retested for fertility and my notes will be sent to the Thyroid Specialist at Public to look over. In the next week or so ill be doing another 21 day blood test to see if my Progesterone levels have improved as they we very low and weren't looking good for ovulation back in January.
There has also been one more outcome from today - my registrar and I started talking about pain, if I had any with periods, whether or not I could have PCOS or Endo and we ended up talking about Kidney and Bladder infections as I will need to be especially careful with my Hypertrophic Kidney now, so mentioned to her that I've been tested several times over past 3 years for UTIs which came back all negative, she thinks I may have a type of Cystitis which is closely linked with IBS. Brilliant as I had already self diagnosed on google haha so we'll look into that eventually too. https://en.wikipedia.org/wiki/Interstitial_cystitis.
To conclude our next steps will be, more waiting, more tests, more procedures, more eating and weight gain, more exercise and sleeping and less stressing. Good things come to those that wait and stay positive :-) I don't get to meet my Surgeon/FertilitySpecialist until all results are in so he knows what steps to take next. He sounds very experienced so looking forward to meeting him.
Will update again when I get my next appointment. Hopefully soon.
