They are still not sure what's going on.. yes..they. As of this week I now have TWO Osteos. My current Osteo was on leave for the school holidays this week so referred me to a colleague who ended up giving me a second opinion really. I had a really interesting session this week learning how the left is also affected and may contribute to whats happening on the right. I booked in to see him next week before seeing my other Osteo again the following week. At this stage we are working on my major issue, which we are leaning towards the below diagnosis based on my symptoms: Sacroiliac Joint Dysfunction.
Interestingly enough, the sacroiliac joint is where my Fathers condition started, Ankolysing Spondilytis, however I have been tested for that gene and was found not to have it. Due to the Auto-Immune side of things could work out to be plain old arthritis yet, or just lack of proper movement for far too long, we will see, plenty more assessing to do.
What we do know is nothing from my diaphragm down really moves freely like it should, your organs should massage each other. Time spent at the Osteo is to start to try and fix some of that as I am now entering the chronic category, I haven't been very symptomatic over the past few years but this has been gradually getting worse, seems I'm so used to pain I just muddle through with it. But this nerve pain is a killer. Its not so bad right at the minute but if my nerve is trapped it may get worse and damage might be hard to repair, but enough for me to react to it. Only time i get relief is when I'm lying down in the evening, most painful when sitting and standing, driving. Seems to be ok when walking but tend to run out of energy, chronic pain is quite tiring. I have much respect for those that battle worse situations than I, most of all my Father, he is a true warrior and that's definitely where I get my pain threshold and determination from. I just think of those dear to me who battled and are currently battling the unthinkable, how courageous they are and how very hard life can be. It definitely raises me up.
So, one day at a time now, work has been great, they give me use of the standing desk whenever I need it, my new job has the flexibility to work from home too as my Osteo is close to home, i'm very lucky in that respect. Will wait and see what unfolds really. Both Osteos want to keep me on and see it through as once again i'm a very interesting case and they are learning a lot, bringing out those old textbooks. There is just so much to potentially fix, just trying to concentrate on one thing at a time.
What I know for sure though is this body is definitely not in any fit state to carry a pregnancy. With this in mind its time to explore all options relating to surrogacy as reality is my body may never be up to it, its something we always knew but seemed unfathomable and unreachable here in NZ, we wont know until we try right?
So, its all part of the journey that is my life and I'm grateful for it. I will continue work hard, play hard and be a better person no matter the circumstances.
