Dr was very busy so was about 30 mins late into appointment but that was ok as team had everything under control at work (I checked from waiting room haha, cant help myself). He asked how I had been, wasn't sure if he actually remembered me, seemed like he did, you kinda cant really forget my weird body once you have heard about it I suppose, he would of brought up my file before the appointment for a quick refresher I bet.
I told him I was here about pain today. I mentioned I was also seeing and OB/GYN and Osteo about pain and both were wanting me to check with him to rule out any contributing bowel issues. Turns out it was the right call really as got a lot out of this appointment, glad I did for $270!!
I did think about jotting all of what we talked about down here but you know parts of it are TMI so ill give you the jist... through diet my symptoms of IBS have somewhat improved to the point where i don't rely on the glycerin suppositories anymore, however my bowel still does not function the way everyone else's does and probably never will again. Going 1-3 times in a 10 day stretch is seen as an improvement, still I suffer from constant pain across my belly button and down my right side where we have confirmed my cecum, like the Osteo predicted, is dropping down lower than it should when full and might be causing pressure on my ligaments, but definitely my bladder, so finally after all these visits we have confirmation of whats causing my bladder discomfort/pain. Also my lower back pain is definitely contributed to by my bowels when they are causing discomfort, however they are not causing the nerve issue. To assist in the reduction of pain (whie we try and fix whats causing the nerve issue) he has prescribed me Movicol for the next 6 weeks to see if there is any reduction in pain or improvements in movement, this will add extra water to my system, supposedly not so much that I need to stay close to home (if you know what I mean). Its also a drink, which is great as it means im getting into the habit of drinking more water too.
He is now tossing up whether to do a follow-up Colonoscopy as my previous one was 10 years ago just about, however thinks we may benefit more from doing a CT Colonography. He will not only check for anything untoward, he will be checking my other 'issues', the length of my bowel, the bowel muscle itself and how I react to pain as he will be blowing it up with air. All of the outcomes of that will determine the course of treatment going forward, he said its likely he will need to act on his findings with surgery so doesn't want to throw that all at me at once, try the Movicol first and look at that next year, hes away at Xmas, so if follow-up leads him to book me in for more diagnostic work, we can make decisions from there. He wants to wait and see what outcome the Osteo has for my back too as he has even offered to refer my for a Spinal MRI now, thinks my nerve pain in leg is disc related. Please do not let that be the case!
Last but not least, he brought up my functional bowel MRI in this appointment to talk about the issues my cecum may be causing putting pressure on my other organs. It was then he pointed to several greyish spots seen on my uterus, spots of what he thought were possibly Adenomyosis. I had never noticed them before then on the scan and wondering if anyone else had? for him to point them out straight away how could my OB/GYN of missed that during my Lap? Sighhh, now Ive got to email my Fert OB/GYN and see what she thinks. That would be something we need to get to the bottom of before our next cycle for sure.
So I have a follow-up booked for 28th November at this stage. Osteo on Thursday again, will update after that. I have a feeling its going to be another eventful 6 months, lets hope I stay employed as going to need my health insurance!
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