So....Osteo!

Well I phoned the Osteo and Colorectal Surgeon this past week. Jeez my bank account is not liking this much at all, luckily parts are claimable as im still technically diagnostic for some parts. Turns out the Osteo wasn't taking on new patients for rest of the year, until it I mentioned I was a referral from a surgeon. I then ended up with two bookings in November and my name on the cancellation list. That seems like a long wait, but was sure it would go quickly.

My cell rang today and It was the Osteo clinic. Wow its only been a few days. Cancelled appointment, could I come in at 2pm, sure! Thankfully I have an awesome team at work, so tidies up loose ends and headed over there, knew I had paperwork to fill in and we all know I have a lot to fill out normally. Met the Osteo and headed into appointment. Im not going to go into too much detail but will cover what I think we might have sorted in the first consultation. I was there for my lower back, hip and sciatic pain, there is so much else I'm sure she will fix for me going forward.

I explained to her that its only been the last 4 years that I have come to learn about my differences in anatomy, how my body works differently to others, complications we have faced with fertility etc. She got me to stand and felt my back, I'm really tight right through my shoulders and back and my hips aren't as wonky as once thought! Good start haha. As we spoke more I started to remember things that I hadn't added to my paperwork I filled in, more importantly my lack of half my reproductive system and the shonky ovary. Lol. She hadn't really heard of a Unicornuate Uterus so this was going to be really interesting for her I'm sure. She asked a bit about the fertility treatment history and then apologised and made sure I was comfortable being there considering they were a Midwifery Centre as well. I assured her not only am I not shy, have a high pain thresh-hold but I am also very strong-minded and would be fine.

She asked me to lay down on the examination table and  relax so she could get an indication of where this pain as originating from... its so hard for me to pinpoint. It shoots out from my lower back into my hip/sitting bones then heads down my thigh into my knee and down to my right foot. I'm thinking it has always been there for a while but was somehow exacerbated by my Lap surgery. 

One thing they tell you at the Osteo (if you haven't been to one before) is that sometimes it feels like they are doing nothing... but they are always doing something. I likened it to a nice light back and abdominal massage, it was actually her exploring my anatomy while we talked about the location of things. In particular we talked about all current 'issues', missing parts, parts that aren't where they are suppose to be and then we focused on this strange painful long lump in my right side. That bothers me a lot of the time and is separate to my Endo and Back Pain. Turns out she thinks is Bowel, which I have always said that is was, where it gets interesting is that its possibly Large Bowel but shouldn't be down there? Its something I'm going to get to the bottom of though as its been noted on my ultrasounds but nothing was found during my lap surgery, time to revisit those scans I think, she was going to access them and take a look. Good spotting by her! lucky I have one more appointment with her before the Colorectal Surgeon in a few weeks time.

One thing she noted is there should be series of ligaments that would have been present on my right hand side to hold onto my kidney may or may not be there, what is holding my right ovary up there near my liver, with that lack of structure it is possible other parts of my anatomy have decided to claim that space? We shall see.

There are definite links to what is going on with my ligaments, nerves, musculoskeletal system right throughout my abdomen and its going to be a lengthy and costly process to get me to start to come right I think, she warned me after today I may feel worse for a few days after all the poking and prodding, I assured her that I can handle it. She is now off to get her text books out before our next appointment as I am a bit of a complicated but interesting case (surprise surprise) and again she might draw on the knowledge of her colleagues too, I feel like I'm in good hands. I'll continue to take Paracetamol when it gets bad enough and try not to sit or stand for too long.

Meanwhile you know I'm going to google it all right, there has GOT to be someone else out there with the same thing going on surely. Next week should know more so likely I wont update until then, it depends what I find on Google.